Sunday 6th September 2015
After Treatment #6
On Thursday I went in to the Ricky Grant Day Unit (chemo unit) as usual for my pre-treatment bloods – no problem there – now they always use the right sized gripper needle for my port, it flushes and produces blood perfectly every time. Then down to oncology to see Dr. Dyke, Dr. Lo’s registrar (Dr. Lo was away this time). We chatted about how I’d been, and because the last one was so much worse, she reduced the dose again in the hope that the effects would be less devastating this time around. She asked me if I felt fit enough to continue, or whether I would prefer a break, but I said absolutely not – there was no way I was going to delay my gilt-edged, red-letter day of 16th October when it all finishes!!
I also mentioned that I was still having problems with mucous discharge from my rectal stump, and that the glycerine suppositories that the stoma nurse gave me were painful, like the Micralax mini-enemas had been, so I wasn’t using them. I told her that over the past couple of days the mucus had also been bloody, so she offered to examine me and see what was going on, which she did. She said she couldn’t see anything alarming, and would phone the stoma nurse. When she returned, she said they agreed I really ought to see Mr. Pullan (my surgeon) so that he could have a look, as this wasn’t really her area of expertise; she would set up an appointment for me which would hopefully come through before my next chemo on 25th September.
I am always very reassured by how they spring into action each time I tell them about any issues I am dealing with – they really go the extra mile to try and help me!
I am hoping that Mr. Pullan won’t recommend the most drastic course of action, which would be for further surgery, to remove the rectal stump altogether, along with my anus, and give me what they call on the stoma forum, a “Barbie butt” – you get the picture!! Mr. Pullan explained to me before the operation that he would be leaving a rectal stump because the removal of the anus is a very difficult operation fraught with complications, and a long and painful rehab afterwards, and more trouble than it was worth, so I was happy to go along with his recommendation.
There is the possibility that there may be some ulcerative colitis in what remains, which could be producing the blood and mucus, and also causing the pain when I used the Micralax and suppositories. If this is the case, he may recommend that I go back on the Pentasa granules (my ulcerative colitis medication) – this would be no hardship.
Anyway, we shall have to wait and see what he says once he’s seen me.
Dr. Dyke gave me another prescription for domperidone, the anti-sickness meds, for me to take after my chemo.
Back again on Friday at noon for my 6th chemo treatment. Again, the port behaved like a dream, although I nearly pulled the needle out of myself when transferring to the recliner chair from my wheelchair, as the line got caught at the back of the wheelchair! All was well, though, because I stopped myself in time, and it was well taped to me, so no damage done.
The session went very well, and the time passed extremely quickly because I was sitting next to a delightful lady and we chatted most of the time! At one point I said to her, “One good thing – like me, you haven’t lost your hair.” She said, “I’m completely bald! This is a wig.” My jaw dropped and I couldn’t believe it! I said it looked so natural and I had absolutely no idea. She was very pleased that I’d reacted like that because she had felt quite a lot of loss of confidence when she started wearing it, thinking that everybody would notice! I said it genuinely never occurred to me that it wasn’t her real hair. She said it was very close to what her real hair had been like, and her daughter was very pleased with the result as well. So nice to be able to make someone’s day without even trying!
I could feel the effects during the final hour, as usually happens with me, and after the nice lady had gone, my hubby turned up and sat with me till it was finished and I’d had my flushes and could go home.
I felt pretty rough in the evening and had an early night, and of course because I went to sleep so early, I woke around 4 a.m. and had to read for a couple of hours. I felt a bit nauseous but there was nothing I could do about that because the pills have to be taken with food and I had to wait till breakfast for that. So I turned off the light and determined to try and sleep again, which would make me unaware of the nausea, and this worked – I woke again at 6 and read some more, trying not to think about my stomach!
I spent the morning in bed and didn’t feel too bad in the afternoon – the steroids were doing their stuff.
Today I didn’t feel too bad when I got up, but once I was downstairs my energy levels fell away and I’ve been resting ever since, and finding it hard to stay awake, dropping off while watching Youtube videos! I shall have another sleep this afternoon, I think.
Too early to say whether the reduced dose is helping this time around – the effects are cumulative, so it may just maintain me at the level of last time, which was the worst so far of the whole course.
To reassure myself, I am reminding myself of several facts: I am now 3/4 of the way through the course; I have had 6 out of the 8 treatments; I have only 2 more to endure; now it’s September, I can say, “I finish next month,” which sounds a lot sooner than “the month after next”; and I have only 6 weeks to go! This makes the end of it all seem very much closer and more manageable. I am amazed at how fast the time is passing – not being one normally to wish my life away, I am certainly wishing this final 6 weeks away all right! I shall, of course, have to endure the recovery period after the final treatment on 16th October, and it’s likely that residual effects will remain with me for many months, maybe up to a year, but not as severe as during the first two weeks post-treatment. I can endure that!
I did flag a little during the two weeks after my previous treatment, and lots of friends online were encouraging me vigorously to keep going – I couldn’t give up at this late stage! – to which I readily agreed! It was just a slight wobble but I’m back on track again. It just felt so, so wearisome, and even though I only had 3 treatments left at that stage, I was finding myself saying, “goodness, I’ve still got 3 more of these to endure,” before bringing myself up short and rephrasing it, “Good! Only 3 more to go!”
And now it’s only 2 more to go. I’ll get there.
Sunday 13th September 2015
A Few Bad Days
After treatment #6, and the reduced dose, I really thought I was starting to do better, but on Wednesday I developed a stomach upset with diarrhoea (extremely plentiful and liquid output from Kermit) and griping pains, and no appetite. This seemed to set me back, not helped by a couple of really bad nights with bad dreams and not sleeping well.
I was feeling better by Thursday, and on Friday I slept quite a bit, and yesterday, while my hubby was out, I slept practically the whole day.
On Friday I got really fed up with how I’ve been, and so wanted it to be all over, and felt quite depressed at how my life had been reduced to getting up, coming downstairs and settling on the recliner all day, and then ending up going to bed again – reduced to living in 2 rooms and not going out, not seeing anybody, and generally starting to feel sorry for myself. I got totally fed up with feeling ill all the time, and frustrated that I couldn’t do all the things I wanted to do, and knowing that my desk is covered with accounts papers crying out to be dealt with didn’t help either.
Last night when my hubby got back, I decided to take myself in hand and told myself it was ridiculous to lose heart at this late stage of the game. After all, I’ve only got 2 more treatments to go, and the end is now in sight, and I’ve got to keep going! I vowed from the beginning that I wasn’t going to turn into a moaning Minnie and now is certainly not the time to start.
I decided to make myself a calendar, counting the days off now that the end really is in sight. Today, I have crossed off 33 days to go!!
I know that after the final treatment on 16th October, I will have at least a fortnight feeling poorly as I get over it, but at least I shall know that I won’t be feeling better only to feel worse again with another treatment. I also know that it takes months, even a year or more, for the effects of the chemo finally to leave one’s body and to start feeling well again, but at least it will be progress in the right direction.
I shall update this calendar as the days pass. I’ve got to keep my spirits up somehow!
Monday 14th September 2015
Not Such a Good Day
I think I may have overdone things a bit yesterday – at last I managed to clear all the accounts papers off my desk and finish last month’s accounts, and in the afternoon my hubby took me and our neighbour for a drive, which was lovely – great to get out of the house for once, and have a view of the sea, and get some fresh air and sunshine. Today I’ve felt weak and shaky and wiped out again, and had a frustrating day trying to make something work on the computer without success, and I’ve felt grumpy and fed up. It wasn’t helped by my intention to spend some time in the studio coming to nothing yet again – I definitely need to get myself in hand because I’ve done so well up till now, and there’s so little left to get through.
Time to cheer myself up with another day crossed off the calendar.
31 days to go!
Tuesday 15th September 2015
Feeling Better Today
My mood is definitely better today and I think I’m back on track again in the positivity stakes (well, at least for now!) and I’ve felt better physically too. I was able to spend the morning in my studio but I didn’t do anything creative, unfortunately – I just spent the time tidying up!
This afternoon I had a visitor, and after she’d gone, I was feeling pretty tired again so I had a sleep before supper.
When my hubby went out this evening, I went up to the studio and started on a creative project until he returned, when I came downstairs. I didn’t want to spend the whole evening up there and get overtired, but I made some good progress.
I am hoping that in the coming days I shall continue to feel better as the effects of the last chemo treatment wear off.
Here’s my calendar for today.
30 days to go! Now just one calendar month! OK, it’s still two treatments, but the end definitely seems a little nearer now.
Wednesday 16th September 2015
A Lovely Day
Things are definitely looking up. I am feeling tons better today both physically and mentally. My black mood has passed and I hope that’s for good. Today a lovely friend came and spent most of the day with me and we had such a good time – a long time since I’ve seen her and we had a lot of catching up to do. She’s only around this week so she’s coming back on Saturday. Family visiting tomorrow so not much time during the rest of this week to spend time in my studio now I’m feeling better, but I’ve got the whole of next week so hopefully I will spend some real quality time in there and work on the projects I’ve been hankering after doing for so long.
My hubby put up with a lot from me when I was so fed up, and wisely kept his distance lol! Then I heard him telling my friend that I was coping really well! Bless him. I do try not to give him a hard time because it’s not just me going through this journey and he’s had a lot to deal with, and it’s always much harder for the spouses, watching us going through it and feeling helpless. I always say he is not helpless – it’s not just all the things he does for me, but just the fact that he is THERE for me, supporting me and encouraging me – that’s more than enough in itself. I feel bad when I let myself down and give him a hard time! I vowed from the beginning that I would do my utmost to avoid doing that, and mostly I’ve succeeded by the grace of God – but I’ve had a few lapses! He is very longsuffering.
My countdown calendar for today:
Suddenly the 30s have become 20s! 29 days to go! The time is flying by now, and once we are into October we’ll really be on the home stretch with only the last treatment to come.
Thursday 17th September 2015
A Special Day
Today is special for two reasons, the first being that it is now only 28 days, or 4 weeks, till my chemo is over! That sounds a very short time, doesn’t it. We are really counting down now.
The other reason today is special is that it is the 30th anniversary of the day my hubby and I first met. We were both at a lecture and he was sitting at the back and spotted me – I had very long hair in those days, that I could sit on, and it was loose all down my back. I don’t think he was concentrating on the lecture at all!!! In the interval he came forward, pretending he wanted to speak to the man who had brought me and a couple of other people – he had been at college with him – but in reality he just wanted to see if the front was as good as the back. He decided it was, and over coffee at the end, he proceeded to chat me up! The rest is history.
We had a nice family visit today, and before and after, I was able to spend time in the studio – two sessions! One good thing about feeling so poorly after each chemo session is that it really makes me appreciate the times when I feel well enough to do things, and to be creative.
Here’s my countdown calendar for today.
Friday 18th September 2015
Sleep, Sleep and More Sleep
Not sure if it’s because I’ve been overdoing things over the past few days, but I had a headache when I went to bed last night, and thought I wouldn’t bother to take anything and I’d sleep it off. I woke at 5.15 a.m. and got up to empty Kermit’s bag, and the headache was worse. I did take something then, and went back to sleep. When I eventually woke again, I was surprised to find it was after 9 a.m.
After my hubby had brought my breakfast I stayed in bed till mid-morning and slept some more. When I got up, I did spend some time in the studio making things for our neighbour, and the headache was worse, and I started to feel a bit sick. I had a cup-a-soup for lunch and that’s all, and for the rest of the day I haven’t been able to keep awake! I did eat some supper but haven’t felt well all day. I am hoping to feel better tomorrow because a friend is supposed to be coming over and I want to be OK for that.
Here is my countdown calendar for today.
27 days to go!
Saturday 19th September 2015
A Better Day Again
I seem rather to be alternating between good and bad days this week! After a much better night’s sleep, the headache was definitely on the way out when I woke, and I’ve felt a lot better all day. My lovely friend came to visit in the p.m. and we had a great time, which gave me a boost, too.
Not a lot else to report. Here’s my countdown calendar for today. Now only 26 days to go.
Sunday 20th September 2015
Not Too Bad
Things definitely improve during the final week of each three-week chemo cycle. Feeling much better now, although I still tire easily and I needed a rest in the late afternoon.
My countdown calendar for today.
Twenty-five days to go.
Monday 21st September 2015
An Outing
Today my hubby took me out which was lovely. I tend to get a bit stir crazy stuck in the house all the time, although I do love being at home, and I get a lot of contact with the outside world via the internet.
We had had a letter in the post a while back from Pelican Healthcare (who supply stoma products) saying they would be visiting our area and a small open afternoon had been arranged in a local hotel suite. This hotel, the Passage House, just outside Newton Abbot, is just next to the Passage House Inn where we have often eaten out, so I suggested we went out for a nice meal first, and then went to the meeting, and this we did. They have a carvery every day and we both opted for that – quite delicious!
Not very many people attended the meeting unfortunately, but the lady from Pelican remembered me from the open day in Newton Abbot a few months ago and was interested to hear how I was getting on. I had a long chat with the couple who run the local branch of the IA (used to be Ileostomy Association but now the Ileostomy and Internal Pouch Support Group) which I decided to join today – I’d thought about it before and didn’t see much point as I was getting a lot of help and support from the Inspire forum and from the stoma team at the hospital, but they have meetings several times a year with different speakers, and it’s an opportunity to meet up with other ostomates and their spouses.
Light refreshments were laid on, and I had some good conversations with several people there, as well as being able to pick the brains of the Pelican representative about one or two things. I came away with a few samples and other bits and pieces, including the inevitable free pens and notebooks! Always useful!
The IA is holding a local meeting in Ottery St. Mary at the beginning of December, with a visiting speaker from the National Trust, speaking about the renovation work at Castle Drogo which I know both my hubby and I will be interested in, so we shall be going to that. Lunch is laid on, and there will be the opportunity for conversation with fellow ostomates. The meetings are apparently quite well attended.
I am rather tired now after a quite busy day, but it was worth it. Always nice to get out of the house, and while the weather looked distinctly unpromising first thing (raining) and we decided to leave the buggy at home, it did clear up and was quite sunny but rather windy, so we didn’t get wet.
My countdown calendar for today.
Twenty-four days till the end of my chemo! I am NOT looking forward to Friday, the penultimate treatment, but at least once that’s over, there will be only one to go.
Tuesday 22nd September 2015
A Busy and Productive Day
I do enjoy these days at the end of each cycle, when I can do things because I feel well enough. Today I have been in my studio making a birthday card for my aunt, and also sorting some new Brusho paints and getting them labelled. Having two weeks out of three when I am not up to doing anything really makes me appreciate the good days.
My countdown calendar for today.
Twenty-three days to go till the end of my chemo. Only one more week of September to go – this year is simply flying by.
Wednesday 23rd September 2015
Another Busy and Productive Day
I do so enjoy these “well” days! I spent quite a bit of time in my studio today pressing on with the projects I am desperately trying to finish before my chemo on Friday!
Tomorrow I am going in for bloods and my regular oncology appointment prior to the chemo on Friday. Both appointments are in the morning, which should leave the afternoon clear to work on.
Here is my countdown calendar for today.
Just over three weeks to go until it’s all over!
Thursday 24th September 2015
Bloods, Oncology and Some Good News
This morning we went in to the Ricky Grant Day Unit again for my pre-chemo bloods. They were running late and I wasn’t called in until 5 minutes before my oncology appointment, so the receptionist called down to warn them I’d be late. The bloods went without a hitch – no problem with the port now that they use the correct sized needle each time. I always remind them it’s the 2.5 cm one because I don’t want to end up stuck like a pin cushion because they can’t get anything out of the different sized ones!!
Then straight down to Oncology and we only had to wait 5 or 10 minutes before I was called in. I saw Dr. Lo again – she had been away on holiday last time and I saw her registrar, Dr. Dyke. Both are extremely nice ladies and I always feel very relaxed and at ease with them.
As usual she asked how I’d got on after my last treatment, and I told her the peripheral neuropathy continued to be a problem, and each time it seemed to last longer. I have been experiencing it a bit this week – it is not usually present in the final week of the three-week cycle. This is the effect they are most concerned about, because if it isn’t monitored it can end up becoming permanent which would be very unpleasant. The only way they can keep it at bay is with a reduced dose of chemo.
Then came the good news. She said that there has been some research ongoing into adjuvant (post-surgery) chemotherapy, which indicates that those whose chemo is reduced may do just as well as those undergoing the full dose for the full six months. In view of this, and the fact that she is concerned about the peripheral neuropathy, she has decided to reduce the dose of my chemo for the final two treatments by half! I asked if this would compromise its effectiveness and she replied with the above information about recent research. I am highly delighted with this news, because I should notice a huge difference in how I feel afterwards, and it makes facing the final two treatments a lot easier, knowing that I am unlikely to feel as poorly as I have been to date.
I have already had the dose reduced by 10 percent on two occasions, but because the effects tend to be cumulative, I haven’t noticed too much difference in how I have felt, and this last time, I have experienced the peripheral neuropathy into the third week, and have also had an unpleasant taste in my mouth pretty well throughout. The exhaustion has been profound, and I have really only enjoyed one week out of the three when I felt better enough to do anything of any consequence – against all the good advice meted out to M.E. patients about boom-and-bust, I have been cramming in as much activity as possible into this one week, because I was getting behind with things, and had deadlines to meet in the studio. As a result, I have got pretty overtired and tend to collapse on the recliner and go off into a deep sleep with very little provocation!
My hubby asked how soon after my final treatment I would be called in for a scan. Dr. Lo replied that it would be six to eight weeks after I’d finished the chemo. I would then only need one scan a year for the next five years, and that they would glean most of the information from blood tests. We talked about cancer markers, and she said that my blood was looking very good, and they had no worries. It really does look as if they got rid of it all with the surgery, and the chemo was just to make sure. I do feel very optimistic that this will have been dealt with effectively and there should be no recurrence.
My penultimate treatment tomorrow begins at 1.15 p.m. I am hoping they won’t phone in the morning to ask me to come in earlier at short notice like they did once before – I was still in bed and knew I couldn’t be ready in time, and ended up rushing about, and then being kept waiting at the other end! They are always concerned about getting oxaliplatin patients through their treatment before they have to shut up shop – this chemo takes four hours to infuse, to which of course you have to add the time involved in inserting the needle and doing the necessary flushings before and after treatment.
I am not sure if half the dose means half the time, or a smaller bag transfused over the same time. We shall have to see.
My countdown calendar for today. Three weeks to go, and then it’s all over.
Friday 25th September 2015
Seventh (Penultimate) Chemo
Today I went in for my seventh, and penultimate chemo treatment. Yesterday Dr. Lo, the oncologist, said she would reduce the dose to half the original amount for the final two sessions in order to mitigate the troublesome side effect of peripheral neuropathy which can become permanent if it is allowed to continue unabated. I was very surprised (and delighted) at this reduction, and was reassured that it would not compromise the effectiveness of the treatment. I am looking forward to seeing if this affects how I feel over the coming fortnight – I should notice a huge difference!
The Ricky Grant Day Unit phoned this morning while I was still in bed, to ask if I would come in earlier than my 1.15 p.m. appointment. I was half expecting this, because it happened before when they’d made me rather a late appointment. Because the treatment takes four hours, they are anxious to finish before the unit closes for the day. Why they can’t think of this when they make the initial appointment is beyond me! Last time I had to rush around and was still late, but at least this time they asked me to come in at 12 noon, so I still had time to get up and do everything that was necessary, and have a bit of time to myself in the morning before setting off.
All went off OK, except that the place was absolutely heaving with people today! For the first couple of hours there wasn’t a recliner chair available for me, even though I specifically requested it because I find it uncomfortable to sit in a normal chair without having my feet up for any length of time. The chair they offered me was the same as the one I’d had on the ward after my operation and it was very uncomfortable! After a short while I transferred back to my wheelchair which was at least more comfortable and supported me in all the right places, but I really did want to get my feet up. It was rather annoying that the man sitting opposite me was sitting on a recliner but in its upright position, so he would have been just as comfortable on a normal chair, freeing up the recliner for the likes of yours truly!! Eventually, though, this recliner became available when the man left, and I sat next to a delightful couple (husband having treatment) and we had a nice chat.
So far since coming home, I’m not feeling too bad, apart from feeling rather weak, exhausted and spaced out, but the steroids are still working and I ate a good supper, and have been on the computer this evening. We shall have to see how things go over the next few days.
Here is my countdown calendar for today. With the completion of treatment #7, I am now down to exactly 3 weeks till the conclusion of my chemo.
Saturday 26th September 2015
A Good Day Post-Chemo
I was thrilled today to be feeling so much better, and even managed to spend a couple of hours in the studio in the morning. I haven’t pushed it, but have felt pretty good.
Here is my countdown calendar for today.
Sunday 27th September 2015
Not So Good Today
I started my day feeling pretty good, but didn’t go in the studio. My hubby was out till the afternoon and had left me a tray of lunch which I managed to eat but had very little appetite. Our sister-in-law popped over this p.m. and I was feeling increasingly tired, and when my hubby came home he took her out for a walk and I went right off to sleep on the recliner, only waking when they returned. My hubby cooked me a small, basic macaroni cheese and they had an Indian takeaway. Again, very little interest in food, and I’ve felt wiped out all evening.
It’s very disappointing because I really did expect to be feeling a lot better than this.
We shall have to see how things go over the next few days.
My countdown calendar for today.
We’ll soon be out of September and then the serious countdown begins!
Monday 28th September 2015
Another Day Feeling Rough
I must say, I didn’t expect to feel as rough as I am today, with the reduced chemo dose. All day I have felt weak and shaky and spaced out, and have spent most of the day resting. I stayed in bed till 11 a.m. and slept on, and then had another sleep this afternoon. I spent about half an hour in my studio but couldn’t keep going, but at least I enjoyed doing a little bit which was fulfilling.
One good thing is that the peripheral neuropathy is definitely better as a result of the reduced dose, which was the aim of the exercise, so I can’t complain! I know this exhausted feeling will pass, and I just have to do my usual thing and keep going with the flow, resting as much as possible, and trying to keep optimistic. It certainly helps, knowing I only have one more treatment, and we are nearly through this long and hard journey.
I have had very little appetite again today but my hubby has tempted me with small and tasty meals, so I have managed to eat.
My countdown calendar for today.
Tuesday 29th September 2015
A Noticeably Better Day on the Reduced Dose
After a not-so-good start, things started to improve during the day and I felt a lot better, and didn’t need a sleep during the day. I did feel pretty paced out and shaky, but without that awful general overall feeling of poorliness that I have had before, especially in the first week of the cycle. The reduced dose is definitely an improvement!
The main reason for the reduction in the dose was to manage the peripheral neuropathy, and this is very much improved as a result. I have not had to wear my gloves apart from on the first couple of days, and I am at the stage now that I would anticipate being in week 3 of the cycle, so this is very good news. I am sure the oncologist will be pleased.
I have been delighted to be able to spend a few short spells in the studio – I can’t do much before I feel too shaky and exhausted to do more and have to come down and rest, but at least I am doing a bit, and a little and often seems to be better than one long stint.
I have also been able to do some drawing from the comfort of the recliner, which is good, so my time is not wasted!
The most important thing I am noticing at the moment is a definite looking-forward and positive attitude about getting my life back to normal again. It’s been a while since I’ve been able to think about this, but now I am anticipating the time when I will be able to start cooking again, and getting the kitchen sorted how I like it, and shopping online for groceries, and taking the laundry back from our lovely cleaning lady who has been doing it for me all these months. With the resumption of normal duties I am going to feel a lot more like myself, although the novelty of domestic tasks may soon pale!! My dear hubby has done so much for me during this year when I have been so ill, and he couldn’t have done better, and I appreciate it more than I can say. He is no cook, but has managed very well with ready meals, and has tried to give me lots of variety, and to make the meals appetising and tempting when I have not felt like eating. He has been kindness itself and I simply don’t know what I’d have done without him! I am looking forward to getting back in harness now and looking after him again, as I used to.
I think that the fact that I am thinking along these lines is very positive. I can now see the end of my treatment well in sight, and it marks the end of Phase 3 of this long journey which has taken all year – Phase 1 being the surgery and its preparation, Phase 2 being recovery and learning how to manage Kermit, my stoma, and Phase 3 being the chemo. No sooner had one phase ended than the next began and it’s been quite a rollercoaster!
They are all very pleased with my progress at the hospital, and my cancer markers are excellent, with no trace remaining. I will have to have scans and blood tests, of course, just to keep an eye on me and make sure it doesn’t return, but Mr. Pullan, the surgeon was very optimistic that he had got it all out.
Here is my countdown calendar for today.
Wednesday 30th September 2015
Continuing Well!
Another good day today on my reduced dose. I took advantage of feeling well and dyed my hair and changed the bedding and sorted the laundry and other odd jobs that took me the whole morning, and then was so exhausted that I had to go to sleep this afternoon! All well though. I was able to do some colouring this evening and just enjoying the positive feelings I am now having about the future, and how easy these last two treatments are proving to be with the reduced dose – a real bonus as I was expecting things to get progressively worse, not better. Very keen now to get my life back on track and start looking after my poor hubby for a bit – he’s very tired at the moment.
So – we are now at the end of September! The serious countdown to the end of my journey is now at hand! Here’s my countdown calendar for today.
